Justina Pelletier’s recent ordeal at the hands of the state of Massachusetts and Boston Children’s Hospital has prompted Congresswoman Michele Bachmann to introduce a legislative impediment to similar cases in the future. You see, the hospital has a policy which states, “Children who are Wards of the State may be included in research that presents greater than minimal risk with no prospect of direct benefit.” Intern Simona Bujoreanu overturned a more experienced doctor’s diagnosis, declaring that Justina had Somatoform, which just happened to be Bujoreanu’s subject of research under a National Institutes of Health grant. This led to the Pelletiers losing their parental rights becasuse they held to the earlier diagnosis. Bachmann’s bill is supported by both Democrats and Republicans.
Tag – Justina Pelletier
The 16 month nightmare is over. A judge’s order is reuniting Justina Pelletier with her parents. She’s the teenager who was placed in the custody of Massachusetts’ equivalent of Child Protective Services after an intern at Boston Children’s Hospital disagreed with the diagnosis and treatment plan of a more experienced doctor at Tufts Medical Center. Sounds crazy, right? Maybe worse than crazy. Justina was the only patient at her care facility who was not allowed to see her parents on Easter. Do you suppose Boston Children’s Hospital will lose some business after all the negative PR?
A day after Linda and Lou Pelletier announced they were denied a Mother’s Day visit with their 15 year-old daughter at a Massachusetts facility, she was moved to another facility in Connecticut. Staff at the JRI Susan Wayne Center for Excellence arranged for the Pelletiers to be able to greet and meet her today.
This week, Massachusetts Department of Children and Families (DCF) took a baby-step in the Justina Pelletier case. She’s the 15 year-old girl who was wrested from her parents’ custody because Boston Children’s Hospital sided with an intern who said the girl was suffering from psychological problems. Justina’s experienced doctor at Tufts Medical Center had diagnosed her debilitating condition as physical.
Top legislative officials in Massachusetts have called for Olga Roche to be replaced as head of the Department of Children and Families. This week she made it easy for them by resigning. Over a year ago the Department assumed custody over Justina Pelletier, who is now 15, stemming from a disagreement involving conflicting medical diagnoses.
Lou and Linda Pelletier were hoping today would be the day they would regain custody of their 15 year-old daughter, Justina. Fat chance with a judge like Joseph Johnson on the bench. He ruled that the Massachusetts Department of Children and Families should retain custody of the Connecticut girl. A doctor at Tufts Medical Center was originally treating Justina for mitochondrial disease, but the DCF sided with a seven-month intern at Boston Children’s Hospital who counter-diagnosed her as having mental problems. Meanwhile, Justina has very little strength left. Her parents may only see her under armed guard. Clergy are not allowed in her room.
The Pelletiers did not get everything they wanted, but it’s a good first step. Their 15 year-old daughter Justina is going back to Tufts Medical Center, which was treating her illness as a medical issue. Boston Children’s Hospital called the problem psychological and brought in the state to strip the couple of their parental rights. The Pelletiers hope for more progress at their next hearing later this month.
Lou and Linda Pelletier had hoped to regain custody of their daughter this week in court. Not only did that not happen, but a judge ordered Justina to be placed in foster care. The girl was originally being treated for mitochondrial disease by a doctor at Tufts Medical Center. Later she was admitted to Boston Children’s Hospital, where a seven-month intern changed the diagnosis to a mental disorder. When the Pelletier’s tried to move Justina back to Tufts, the state intervened and they lost custody. The court has forbidden the parents to talk about the case.
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